Trustee Recruitment

Epilepsy Society

Can be based anywhere in the UK with a mix of online and in person meetings.

  • Location Can be based anywhere in the UK with a mix of online and in person meetings.
  • Sector Not For Profit
  • Client Epilepsy Society
  • Job Type Permanent
  • Salary/Remuneration Voluntary position but includes reasonable expenses
  • Reference GSe99305
  • Closing Date Thursday 15th June 2023

The Epilepsy Society

Trustee Recruitment

  • Location – Can be based anywhere in the UK with a mix of online and in person meetings. The majority of Board and planning meetings will take place in Chalfont St Peter, Buckinghamshire.
  • Remuneration – This is a voluntary position but includes reasonable expenses.
  • Time Commitment – On average one day per month.

About the Epilepsy Society

Our vision is for a world where epilepsy is irrelevant and people with epilepsy lead the lives they want to lead. There are 600,000 people with epilepsy in the UK and as many as 1,200 epilepsy-related deaths every year. One third of people with epilepsy have uncontrolled seizures, meaning they cannot drive or live their lives to the full without anxiety which impacts education, employment and their ability to support a family.

We are the UK’s only charity transforming the lives of people with epilepsy through world leading research, advocacy, and care. We put people at the heart of everything that we do. Epilepsy Society funded research falls under four integrated areas: genomics, neuroimaging, neuropsychology, and neuropathology. We are part of a unique arrangement with University College London Queen Square Institute of Neurology and University College London National Hospital for Neurology and Neurosurgery. This ensures academic and clinical excellence, patient input and relevance of our medical research. We also campaign, run a helpline service, disseminate epilepsy information and care for around 100 people with complex neurological needs.

The Epilepsy Society has ambitious plans for delivering on our strategy for research, care and advocacy. Trustees will need to ensure that the charity has a clear vision, mission and strategic direction and that the charity is focused on achieving these.

Our new Trustees

To help lead us through this next phase of our journey as a charity, we are looking for bold, brave and determined Trustees who will be able to help us to realise our significant ambitions. We benefit from a valuable country estate in Chalfont St Peter where we have been located for over 130 years since the charity was founded in 1892. Most recently, the charity has submitted an application for planning permission for a breath-taking expansion of its research and care facilities on this land, which will be a priority project for incoming Trustees.

A word from our Chair of Trustees, Kate Alcock: “The Epilepsy Society is at one of the most exciting and pivotal points in its 131-year history. As a board of Trustees, we have a once-in-a-lifetime opportunity to revolutionise the diagnosis and treatment of people with epilepsy and offer unprecedented hope for those with uncontrolled seizures. Epilepsy presents unique challenges to those with seizures, and we need to find unique solutions. We need to redeem the treasure that lies within in our 300-acre estate, but first we must persuade planners, politicians and the local community why building on part of our land is the right thing to do.

Our ambition is to make the charity fit for the future by using our enviable legacy to push forward the boundaries of our own pioneering research and turn epilepsy on its head. We want to transform the land that we inherited from our founding fathers into potentially life-saving science.

The Epilepsy Society supports people who are resilient in the face of adversity. Who don’t give up easily. Who dismiss the last seizure, the bruises, the broken teeth and the smashed glasses and refuse to be defeated. I need Trustees with similar resilience and fortitude who can employ their energy, passion and professional skills to enable our incredible team of researchers at our Chalfont Centre to revolutionise epilepsy. I am looking for ordinary people to do extraordinary things. People who will be excited and proud to make medical history. I look forward to hearing from you.”

Our ideal candidates:

  • Will have Senior executive, and ideally non-executive, experience gained at Board level.
  • We be experienced in driving quality and standards improvement and/or regulatory compliance.
  • Will have the ability swiftly to acquire an understanding of the legal duties, responsibilities, and liabilities of trusteeship.
  • Will uphold the Society’s values – Caring, Accountable, Improving, Respectful, Open.
  • May have lived experience of epilepsy.

In addition, we are looking for senior professional experience in one or more of the following areas:

  • Medical Research
  • Property Development
  • Medical Services
  • Fundraising
  • People management/ employment law
  • Care services

Advert Closing Date: 15th June 2023

Preliminary Interviews: with GatenbySanderson: w/c 3rd and 10th July

Second stage interviews: with the Epilepsy Society: w/c 24th July


Confidential Discussion:

For a confidential discussion please contact our recruitment advisers at GatenbySanderson:

Michelle Sander, Research Lead, Not for Profit Practice - / 07341 773 817

Liz Dean-Stevens, Senior Consultant, Not for Profit Practice - / 07341 773 715

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Liz Dean-Stevens: 07341 773 715
Michelle Sander: 07341 773 817

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